Tuesday, November 25, 2008

Knox Update




Alright, so we use this blog not only to keep our family and friends up to date with what is going on in our lives, but also as a journal for our children.  So here goes one that isn't a super fun read.  We got a call yesterday letting us know that there was a cancellation at the Gastroenterologist that Knox was scheduled to see at the end of Dec, and that we could come this morning at 10.  So we made the trip up to Salt Lake City to see the specialist.  The visit went well.  We now have a direction in which we are moving to get answers to his chronic diarrhea.  Nice I know, but many of you already know this and know that it has been going  on since June.  The original Celiac disease test came back negative.  When we went today he said that that particular test can give false negatives, but he doesn't think that it is celiacs but that is the next test if nothing comes back on the first which is a stool sample...Haha...fun fun, since his poop is so runny and mucussy, we get to put Saran wrap in his diaper wait til he poops then pour it into a container and take it to the lab.  Sounds like it can get a little messy.  They are looking for red and white blood cells in his stool.  The Dr. thinks that it could possibly be colitis so we are following that route first, then a 3 day round of antibiotics to rule out a bacterial infection and then a 12 day cycle of super strength probiotics.  If all of that comes back clear and good on to the celiac testing and if that is clear on to a couple other steps...If all comes back clear then he will be diagnosed with a motility dysfunction that is unspecified and we will have to add more fiber and fat and cut back on liquid.  Are you all enjoying this ?  If it is colitis they will have to scope his bowels to try and find out were the inflammation is and then biopsy that section.  Oh ya and we have to take him off soy milk too and on to Rice milk, ugh, poor thing.
  So that is where we are with our little man.  He is such a trooper.  He has the best temperament.  He is so patient and happy and I am anxious to make his tummy troubles go away.  He loves to wrestle with the boys outside and he will run and and say "push" before he pushes or "punch" before he punches.  We were at Ikea today and he told his daddy "daddy wait".  He is a clever little man.  He loves his big sister.  Presley had an awesome day today- no fits or crying out bursts... It was wonderful and weird at the same time to have such a happy child even when she was told no.  

Sunday, November 16, 2008

Milestone

Knox has started putting words together.  Yesterday 11-15-2008, Knox said to his little neighbor friend..."bye bye Lilly" and today he said "night night sissy" at nap time.  I know its not huge but it is a start for an 18 month old.  He is so dang cute ! Presley is just as busy as a bee and likes to push our buttons any opportunity that she gets.  She is still super sweet and today we asked her..."why do you want to watch second Hand Lions all the time?" and her reply "Their are no witches in it".  I guess that is what we get, she watches Cinderella, enchanted, and sleeping beauty a lot and she hates the witches.  Bry caught her singing a song today "birds drink water, birds drink water, birds drink water so they can grow" and then she threw in a neighbor boys name..."sammy drinks water, sammy drinks water so he can grow".  Alright, just an update for their growth and progression.

Saturday, November 1, 2008

Halloween Post #2

Happy Halloween !! Alright I know it is over but we had fun while it lasted. We went trick or treating at Helaman halls last night with our friends from Wymount and had a ton of fun. I think about what good memories these group outings will be for Presley and Knox. It will be an adjustment for her when we move back into the real world when there aren't 20 other kids to play with just outside her front door. It does have its down side, but we are enjoying it. SO I was kind of expecting some compliments on the costume I made for Presley...Uh hello people, you do understand that sewing is soooo foreign to me and I am super proud of myself, I mean I would have been happy with anything that resembled a dress but I did this :)!! Just making myself feel good ! Knox was a Lion, it was his cousin Madison's costume when she was little and besides her Knox was the cutest Lion ! He was so cute at the doors he knocked on and said "tick o teet". Anyway- Enjoy a ton of pictures !

So here we are at the Pumpkin patch Tuesday before Halloween to pick Pumpkins...


Presley wanted a picture with the kitty Cat for her cousin Teagan


This is my Handsome Lion...He didn't like the head piece

I got him to wear it long enough to take this picture !
Knox and Mommy

My beautiful Belle a little tired of trick or treating

He would be a beautiful girl too !!
Presley and her friends Ada and Bekim
Knox trying to eat a donut with no hands...
Presley about to have her turn...
Our trick or treating group...Fallowfield Fam, Gjoligu Fam, Carter Fam, and the Rogers...We had 3 Belles, a pioneer, a horse,a cowboy, a pirate, a lion, and a superman